ALS patient participates in ice bucket challenge
Mon, 25 Aug 2014 05:51:43 GMT —
44-year-old Brian Yachovitz was diagnosed two years ago with ALS.
His brother Bobby organized an ice bucket challenge at the Island Green Resort on Sunday.
Bobby says his brother was excited to participate in the nationwide trend.
We have seen a couple videos online and stuff how other patients have taken the challenege," said Bobby. I asked do you want to get the water dumped on you and he says definitely I would be honored to do it."
Bobby's father was diagnosed 30 years ago with ALS.
He was 43 at the time and died five years later.
"We thought it jumped a generation, it did not. My Brian is affected with it," said Brian's mom, Pat Raffaniello. "He was diagnosed at 42, he is now 44."
Dozens of people participated in Sunday's ice bucket challenge at Island Green.
Some of the participants say the ice bucket challenge lets us all experience what ALS patients live with every day.
"Someone that lives with ALS feels like they are having a bucket of ice water dumped on their head every single day. And it's to make us realize how they are suffering," said Doreen Coleman, a participant in the challenge.
Brian is one of 30,000 people suffering from ALS.
It's a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord.
"Itâ??s a very degenerative, paralyzing, devastating disease," said Raffaniello.
Bobby says all the attention ALS is getting is overdue.
He hopes the ice bucket challenges are the answers to his family's prayers.
"Every day we pray for a miracle. I believe this is it. We've gotten our miracle. And it's nice to be part of it," said Bobby.
The Island Green community raised $3,000 during Sunday's event.
Bobby says he challenges the city of Myrtle Beach and Myrtle Beach Mayor John Rhodes to take on the ice bucket challenge.